Background: Healthcare professionals may have a preconceived idea about life after an acquired brain injury (ABI). Understanding lived experiences, post-hospitalisation, may improve communication between healthcare professionals and individuals directly influenced by the ABI.
Objective: To describe perceived experiences of individuals with ABI, and their significant others, regarding rehabilitation services and returning to daily activities, one-month post-discharge from acute hospitalisation.
Method: Semi-structured interviews, via an online platform, expanded on the experiences of six dyads (individuals with an ABI and their significant others). Data were thematically analysed.
Results: Six main themes emerged that best described participants’ experiences; three of which were shared. Individuals with an ABI acknowledged recovery as their priority and highlighted the importance of patience. The need for counselling and additional support from healthcare professionals and peers arose. The significant others expressed a need for written information, improved communication from healthcare professionals, and education regarding the implications of an ABI. The COVID-19 pandemic negatively influenced all participants’ overall experiences, mainly due to termination of visiting hours. Psychosocial intervention would have been beneficial to all participants. Faith influenced most participants’ attitudes towards recovery and adapting post-ABI.
Conclusion: Most participants accepted their new reality but required additional support to cope emotionally. Individuals with an ABI would benefit from opportunities to share experiences with and learn from others in a similar situation. Streamlined services and improved communication may alleviate anxiety among families during this crucial transitional period.
