Parent-perceived challenges related to the pediatric cochlear implantation process and support services received in South Africa

dc.contributor.authorBhamjee, Aaqilah
dc.contributor.authorLe Roux, Talita
dc.contributor.authorSchlemmer, Kurt
dc.contributor.authorPerold, Jennifer L.
dc.contributor.authorCass, Nicolize
dc.contributor.authorSchroeder, Kelly
dc.contributor.authorSchlesinger, Dani
dc.contributor.authorCeronio, Deon
dc.contributor.authorVinck, Bart M.
dc.contributor.emailtalita.leroux@up.ac.zaen_ZA
dc.date.accessioned2020-01-13T13:05:31Z
dc.date.issued2019-11
dc.description.abstractOBJECTIVE : To determine and describe parent-perceived challenges related to the pediatric cochlear implantation process and support services received. METHOD : A multicenter survey study across six cochlear implant (CI) programs in South Africa (SA) was conducted. The study sample included 82 parents of pediatric (≤18 years) CI recipients with at least 12 months CI experience. A self-administered questionnaire was developed for the purpose of this study, exploring parental challenges regarding the CI process, education of their implanted children and the support services received. RESULTS : The financial implications of cochlear implantation, including CI device maintenance, were identified by parents as the most prominent challenge. Financing issues were the highest scoring reason that attributed to the delay between diagnosis of hearing loss and cochlear implantation, as well as the greatest barrier to bilateral implantation. Parent-perceived educational challenges included finding adequate educational settings specific to the individual needs of their child and a shortage of trained teachers equipped to support children with CIs. The presence of one/more additional developmental conditions and grade repetition were associated with more pronounced parent-perceived educational challenges. Parents considered speech-language therapy as the most critical support service for their implanted children to achieve optimal outcomes, while parent guidance was indicated to be the most critical support service required for parents of pediatric CI recipients. CONCLUSION : A greater understanding of parent-perceived challenges will guide CI professionals to promote optimal outcomes, evidence-based service delivery and on-going support to pediatric CI recipients and their families. Study results imply a call for action regarding financial and educational support for pediatric CI recipients in SA.en_ZA
dc.description.departmentSpeech-Language Pathology and Audiologyen_ZA
dc.description.embargo2020-11-01
dc.description.librarianhj2020en_ZA
dc.description.urihttps://www.elsevier.com/locate/ijporlen_ZA
dc.identifier.citationBhamjee, A., Le Roux, T., Schlemmer, K. et al. 2019, 'Parent-perceived challenges related to the pediatric cochlear implantation process and support services received in South Africa', International Journal of Pediatric Otorhinolaryngology, vol. 126, art. 109635, pp. 1-10.en_ZA
dc.identifier.issn0165-5876 (print)
dc.identifier.issn1872-8464 (online)
dc.identifier.other10.1016/j.ijporl.2019.109635
dc.identifier.urihttp://hdl.handle.net/2263/72836
dc.language.isoenen_ZA
dc.publisherElsevieren_ZA
dc.rights© 2019 Elsevier B.V. All rights reserved. Notice : this is the author’s version of a work that was accepted for publication in International Journal of Pediatric Otorhinolaryngology. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. A definitive version was subsequently published in International Journal of Pediatric Otorhinolaryngology, vol. 126, art. 109635, pp. 1-10, 2019. doi : 10.1016/j.ijporl.2019.109635.en_ZA
dc.subjectCochlear implant (CI)en_ZA
dc.subjectSouth Africa (SA)en_ZA
dc.subjectParentsen_ZA
dc.subjectPerceptionsen_ZA
dc.subjectChallengesen_ZA
dc.subjectSupport servicesen_ZA
dc.titleParent-perceived challenges related to the pediatric cochlear implantation process and support services received in South Africaen_ZA
dc.typePostprint Articleen_ZA

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