A scoping review of parental roles in rehabilitation interventions for children with developmental delay, disability, or long-term health condition

dc.contributor.authorSmith, Katherine A.
dc.contributor.authorSamuels, Alecia E.
dc.date.accessioned2022-01-18T06:36:28Z
dc.date.issued2021-04
dc.description.abstractThe importance of parental roles in rehabilitation interventions (i.e. the tasks and responsibilities assigned to parents in intervention) is widely reported but there is a paucity of information regarding the tasks linked with specific parental roles. A rigorous scoping review was conducted to understand the various roles that parents of children with developmental delays, disabilities, and long-term health conditions perform in intervention and the tasks and responsibilities associated with each role. The results confirm that parents take on distinct intervention roles which can be placed on a continuum from passive to active responsibility. Some parental roles are clearly associated with tasks completed in-session, some are linked with out-of-session tasks while others entail a combination of in-and out-of-session tasks. The in-session tasks linked with the Learner role emerged as central to enabling parents to assume other in-and out-of-session roles. The results also highlight the influence of the parent-professional relationship on the type of roles parents take on in their child’s intervention. The findings of the scoping review serve as the initial step in generating items for a tool to measure the type of roles that parents assume in intervention to empirically test the relationship between these roles and parental engagement.en_ZA
dc.description.departmentCentre for Augmentative and Alternative Communication (CAAC)en_ZA
dc.description.embargo2023-02-04
dc.description.librarianhj2022en_ZA
dc.description.sponsorshipThe University of Pretoriaen_ZA
dc.description.urihttps://www.elsevier.com/locate/redevdisen_ZA
dc.identifier.citationSmith, K.A. & Samuels, A.E. 2021, 'A scoping review of parental roles in rehabilitation interventions for children with developmental delay, disability, or long-term health condition', Research in Developmental Disabilities, vol. 111, art. 103887, pp. 1-15.en_ZA
dc.identifier.issn0891-4222
dc.identifier.other10.1016/j.ridd.2021.103887
dc.identifier.urihttp://hdl.handle.net/2263/83334
dc.language.isoenen_ZA
dc.publisherElsevieren_ZA
dc.rights© 2021 Elsevier Ltd. All rights reserved. Notice : this is the author’s version of a work that was accepted for publication in Research in Developmental Disabilities. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. A definitive version was subsequently published in Research in Developmental Disabilities, vol. 111, art. 103887, pp. 1-15, 2021. doi : 10.1016/j.ridd.2021.103887.en_ZA
dc.subjectRehabilitationen_ZA
dc.subjectInterventionen_ZA
dc.subjectParental roleen_ZA
dc.subjectChilden_ZA
dc.subjectDevelopmental delayen_ZA
dc.subjectLong-term health conditionen_ZA
dc.subjectDisabilityen_ZA
dc.subjectInvolvementen_ZA
dc.subjectEngagementen_ZA
dc.titleA scoping review of parental roles in rehabilitation interventions for children with developmental delay, disability, or long-term health conditionen_ZA
dc.typePostprint Articleen_ZA

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