The changing dynamics of community care and support in rural Malawi : the impact on Women's health and wellbeing at end of life
| dc.contributor.author | Hawkins, Maren M. | |
| dc.contributor.author | Dressel, Anne | |
| dc.contributor.author | Kendall, Nancy | |
| dc.contributor.author | Wendland, Claire | |
| dc.contributor.author | Hawkins, Stephen | |
| dc.contributor.author | Walker, Kimberly | |
| dc.contributor.author | Mkandawire, Elizabeth | |
| dc.contributor.author | Kirungi, Jackline | |
| dc.contributor.author | Kako, Peninnah | |
| dc.contributor.author | Mkandawire-Valhmu, Lucy | |
| dc.date.accessioned | 2022-12-15T12:49:07Z | |
| dc.date.issued | 2022-05 | |
| dc.description.abstract | In this critical ethnographic study, we examined women's end of life experiences in Malawi, one of the few countries in the world with a national palliative care policy. Specifically, we explored how women's and their caregivers' experiences were shaped by family and community care, and material needs. Interviews and observations with female clients of a non-governmental organization in rural Central Malawi, and with their caregivers, revealed that community-level support was both precarious and critical. We found three main themes: (1) I stay with them well, (2) we eat together, and (3) everyone is for themselves. The analysis illustrates the centrality of community care, social in/exclusion, and availability of stable food, shelter, medical, and caregiving resources on health and wellbeing at end of life. We provide recommendations to strengthen community care opportunities and women's resource bases. | en_US |
| dc.description.department | Agricultural Economics, Extension and Rural Development | en_US |
| dc.description.embargo | 2023-04-01 | |
| dc.description.librarian | hj2022 | en_US |
| dc.description.sponsorship | The University of Wisconsin-Milwaukee Center for Global Health Equity and Sustainable Peacebuilding Program. | en_US |
| dc.description.uri | https://www.elsevier.com/locate/socscimed | en_US |
| dc.identifier.citation | Hawkins, M.M., Dressel, A., Kendall N. et al. 2022, 'The changing dynamics of community care and support in rural Malawi: The impact on Women's health and wellbeing at end of life', Social Science & Medicine, vol. 301, art. 114934, pp. 1-8, doi : 10.1016/j.socscimed.2022.114934. | en_US |
| dc.identifier.issn | 0277-9536 (print) | |
| dc.identifier.issn | 1873-5347 (online) | |
| dc.identifier.other | 10.1016/j.socscimed.2022.114934 | |
| dc.identifier.uri | https://repository.up.ac.za/handle/2263/88837 | |
| dc.language.iso | en | en_US |
| dc.publisher | Elsevier | en_US |
| dc.rights | © 2022 Elsevier Ltd. All rights reserved. Notice : this is the author’s version of a work that was accepted for publication in Social Science and Medicine. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. A definitive version was subsequently published in Social Science and Medicine, vol. 301, art. 114934, pp. 1-8, doi : 10.1016/j.socscimed.2022.114934. | en_US |
| dc.subject | Malawi | en_US |
| dc.subject | Palliative care | en_US |
| dc.subject | End of life care | en_US |
| dc.subject | Community care | en_US |
| dc.subject | Qualitative research | en_US |
| dc.subject | Critical ethnography | en_US |
| dc.title | The changing dynamics of community care and support in rural Malawi : the impact on Women's health and wellbeing at end of life | en_US |
| dc.type | Postprint Article | en_US |