Measures for social support in raising a child with a disability : a scoping review

dc.contributor.authorMantri‐Langeveldt, Anushka
dc.contributor.authorDada, Shakila
dc.contributor.authorBoshoff, Kobie
dc.date.accessioned2019-07-18T08:40:12Z
dc.date.issued2019-03
dc.description.abstractBACKGROUND : The benefits of social support for caregivers raising a child with a disability have been identified in the literature. These benefits include the improvement of the mental and physical well‐being of the caregivers, improvement in caregiving styles, and overall improvement of family quality of life. Whilst the benefits of social support are widely reported, the definitions and measures of social support in the literature are varied. METHOD : A scoping review was therefore undertaken to identify and describe the tools used to measure social support of primary caregivers (i.e., parents or grandparents) raising a child (0–18 years) with a congenital disability in international studies. Ten databases were systematically searched. RESULTS : Sixteen studies were included in the review, from which nine social support measures were identified. Attributes of the measures were searched from their referenced papers and described in terms of their reported psychometric properties. CONCLUSIONS : Through the identification of the measures of social support and ensuring its accurate measurement, direction can be provided for intervention by allowing professionals to detect and address social support available. Future recommendations for research are made.en_ZA
dc.description.departmentCentre for Augmentative and Alternative Communication (CAAC)en_ZA
dc.description.embargo2020-03-01
dc.description.librarianhj2019en_ZA
dc.description.urihttp://wileyonlinelibrary.com/journal/cchen_ZA
dc.identifier.citationMantri‐Langeveldt A, Dada S, Boshoff K. Measures for social support in raising a child with a disability: A scoping review. Child: Care, Health and Development 2019;45:159–174. https://doi.org/10.1111/cch.12646.en_ZA
dc.identifier.issn0305-1862 (print)
dc.identifier.issn1365-2214 (online)
dc.identifier.other10.1111/cch.12646
dc.identifier.urihttp://hdl.handle.net/2263/70764
dc.language.isoenen_ZA
dc.publisherWileyen_ZA
dc.rights© 2019 John Wiley & Sons Ltd. This is the pre-peer reviewed version of the following article : Measures for social support in raising a child with a disability: A scoping review. Child: Care, Health and Development 2019;45:159–174. https://doi.org/10.1111/cch.12646. The definite version is available at : http://wileyonlinelibrary.com/journal/cch.en_ZA
dc.subjectMeasurement instrumentsen_ZA
dc.subjectMethodological qualityen_ZA
dc.subjectSystematic reviewen_ZA
dc.subjectNetworksen_ZA
dc.subjectStressen_ZA
dc.subjectParentsen_ZA
dc.subjectFamiliesen_ZA
dc.subjectMothersen_ZA
dc.subjectYoung childrenen_ZA
dc.subjectPhysical healthen_ZA
dc.subjectSocial supporten_ZA
dc.subjectPsychometric propertiesen_ZA
dc.subjectCaregiversen_ZA
dc.subjectGrandparentsen_ZA
dc.titleMeasures for social support in raising a child with a disability : a scoping reviewen_ZA
dc.typePostprint Articleen_ZA

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