Exploring the experiences of persons living with albinism in Ghana
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Date
Authors
Daklo, Andrew Kwame
Obadire, Olusegun Samson
Journal Title
Journal ISSN
Volume Title
Publisher
Taylor and Francis
Abstract
Albinism is typically misunderstood, resulting in myths and misconceptions about the condition in different parts of the world. This study explores the misconceptions about albinism in Ghana through the lens of lived experiences of persons living with albinism (PLWA) and other relevant stakeholders to ascertain the level of socio-cultural exclusion. This study used qualitative methods and a purposeful non-probability sampling strategy was employed to gather diverse perspectives of information from participants in this study. The participants with albinism, their families, and experts were interviewed in semi-structured street interviews about their lives and the impacts of albinism on their human rights. The results revealed the extent of the suffering and denials experienced by persons living with albinism in different communities in Ghana. It reveals that due to certain misconceptions many PLWA were denied access to education, brutalised, killed, some lost their source of livelihood, and dehumanised. The study recommends that the government should organise intensive public education and health awareness in collaboration with civil society organisations to demystify albinism and promote the human rights of PLWA in Africa and Ghana in particular.
Description
Keywords
Mental health, Health conditions, People with albinism, Social exclusion, Lived experiences, Myths, Well-being, Ghana, SDG-03: Good health and well-being, SDG-10: Reduced inequalities, Persons living with albinism (PLWA)
Sustainable Development Goals
SDG-03:Good heatlh and well-being
SDG-10:Reduces inequalities
SDG-10:Reduces inequalities
Citation
Andrew Kwame Daklo & Olusegun Samson Obadire (2024) Exploring the
experiences of persons living with albinism in Ghana, Cogent Education, 11:1, 2335792, DOI: 10.1080/2331186X.2024.2335792.