Being heard – supporting person-centred communication in paediatric care using augmentative and alternative communication as universal design : a position paper

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dc.contributor.author Thunberg, Gunilla
dc.contributor.author Johnson, Ensa
dc.contributor.author Bornman, Juan
dc.contributor.author Ohlen, Joakim
dc.contributor.author Nilsson, Stefan
dc.date.accessioned 2021-06-08T13:47:50Z
dc.date.available 2021-06-08T13:47:50Z
dc.date.issued 2021-06
dc.description.abstract Person-centred care, with its central focus on the patient in partnership with healthcare practitioners, is considered to be the contemporary gold standard of care. This type of care implies effective communication from and by both the patient and the healthcare practitioner. This is often problematic in the case of the paediatric population, because of the many communicative challenges that may arise due to the child's developmental level, illness and distress, linguistic competency and disabilities. The principle of universal design put forth in conventions and legislation means that the design of products and services should be usable by all people, to the greatest extent possible. Augmentative and alternative communication encompasses strategies, for example pictures and apps, that are typically used with people with communication disability. In this position paper, we argue for the universal use of augmentative and alternative communication to support person-centred communication and care for children, regardless of age or potential disability. Clinical examples are shared from three different paediatric care settings where pictorial supports were applied universally. Interviews were conducted with children and adolescents (with and without disabilities), parents and healthcare practitioners, and the principles of universal design were used as a framework to demonstrate how person-centred communication is supported in paediatric care. en_ZA
dc.description.department Centre for Augmentative and Alternative Communication (CAAC) en_ZA
dc.description.librarian hj2021 en_ZA
dc.description.sponsorship Barncancerfonden; Vinnova; STINT, Vetenskapsrådet, Forte; NRF, and the University of Gothenburg Centre for Person-centred Care (GPCC), Sweden, which is funded by the Swedish Government's grant for Strategic Research Areas (Care Sciences) and the University of Gothenburg, Sweden. en_ZA
dc.description.uri http://wileyonlinelibrary.com/journal/nin en_ZA
dc.identifier.citation Thunberg G, Johnson E, Bornman J, Öhlén J, Nilsson S. Being heard – Supporting person-centred communication in paediatric care using augmentative and alternative communication as universal design: A position paper. Nursing Inquiry 2021;00:e12426. https://doi.org/10.1111/nin.12426. en_ZA
dc.identifier.issn 1320-7881 (print)
dc.identifier.issn 1440-1800 (online)
dc.identifier.other 10.1111/nin.12426
dc.identifier.uri http://hdl.handle.net/2263/80252
dc.language.iso en en_ZA
dc.publisher Wiley en_ZA
dc.rights © 2021 The Authors. Nursing Inquiry published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License. en_ZA
dc.subject Augmentative and alternative communication (AAC) en_ZA
dc.subject Communication en_ZA
dc.subject Communication development en_ZA
dc.subject Human rights en_ZA
dc.subject Paediatric care en_ZA
dc.subject Person-centred care en_ZA
dc.subject Pictorial support en_ZA
dc.subject Universal design en_ZA
dc.title Being heard – supporting person-centred communication in paediatric care using augmentative and alternative communication as universal design : a position paper en_ZA
dc.type Article en_ZA


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