Information and support needs of parents with premature infants : an integrative review
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Date
Authors
Davis-Strauss, Susan Lynn
Johnson, Ensa
Lubbe, Welma
Journal Title
Journal ISSN
Volume Title
Publisher
Sage
Abstract
International research, while mostly conducted in high-income countries, repeatedly states that parents of premature infants have increased needs and require additional information and varied support channels after the infant’s initial discharge from hospital. However, the perceived self-reported needs of parents concerned with the caregiving of premature infants during the initial time period at home after discharge are not well known. This integrative review explores all extant literature that embodies self-reported or parent-quoted perceptions, experiences, and parent testimonials related to post-discharge infant caregiving information and support needs published from January 1990 to April 2019. Generated findings from the review that reveal parents, regardless of country, consistently reported unmet information and support needs, coupled with a lack of adequate community-based and health care professional support. Current gaps in literature are identified and recommendations for future research are also addressed.
Description
Keywords
Parent training, Components of practice, Infants and toddlers, Young children, Child care, Child development, Family collaboration and support, Parent, Premature infant, Caregiving needs, Post-discharge, Low- and middle-income countries (LMICs)
Sustainable Development Goals
Citation
Davis-Strauss SL, Johnson E, Lubbe W. Information and Support Needs of Parents With Premature Infants: An Integrative Review. Journal of Early Intervention. 2021;43(3):199-220. doi:10.1177/1053815120957734.