Abstract:
Families with an adolescent diagnosed with epilepsy employ strategies to cope with the
diagnosis. Critical realism, family systems theory and a mixed methods research design
were utilized to acquire an enhanced understanding of the processes and experiences of
these families. The McMaster and Circumplex models of family functioning were also
applied. Through a process of informal discussions with neurologists and a review of the
literature, aspects of family relational support were identified as an under researched topic.
The purpose of this study was to explore family processes and coping strategies.
Accordingly, family process profiles, in particular, family satisfaction, functioning and
hardiness, as reported by patients and family members, were assessed by means of
biographical information and standardized measuring instruments. Furthermore, interviews
were conducted and Graphic Family Sculpting administered to explore the experiences of
these families. The sample comprised 15 families of adolescents with epilepsy. Quantitative
results revealed that male patients coped better than female patients and younger patients
had lower adaptability skills and family satisfaction than the older cohort. The patients
generally functioned better than their families. Qualitative results showed that epilepsy
affects both family members and patients; furthermore, they have a need for support in
family relational aspects and knowledge about epilepsy. The mixed methods results
revealed that the quantitative and qualitative data complemented each other and created a
sense of convergence. Support for these patients, families, meaningful others and treating
medical specialists, may assist South African adolescents and their families to function
optimally and cope better with their diagnosis.
