Abstract:
BACKGROUND : Physical, financial, social and emotional demands placed on caregivers caring
for their children with severe intellectual disabilities (CWSID) could lead to high levels of
burden.
AIM : This study aimed to evaluate the potential level of burden experienced by South African
caregivers and aimed to identify possible contributing risk factors for increased levels of
caregiver burden.
SETTING : Online and community parent support groups.
METHODS : This quantitative survey design study utilised data from 218 South African caregivers
of CWSID. Both descriptive and inferential statistics were used for analysis. Family is the main
support for 67% of participants.
RESULTS : Moderate to severe levels of caregiver burden were reported. No definite links between
potentially contributing demographic risk factors and the overall level of caregiver burden
were found. Caregivers of CWSID need to receive the required support from an early stage in
the child’s diagnosis to decrease potential caregiver burden and improve quality of life (QoL).
CONCLUSION : Implications on intervention and prevention practices could inform the creation
and implementation of a protocol to avert increased caregiver burden. Future research could
be conducted to determine the implications of intervention towards CWSID and their family
to decrease caregiver burden.
CONTRIBUTION : The study provided insight into the burden experienced by caregivers of CWSID. This is in line with the journal as it further proves how vulnerable CWSID are and the
support they should be receiving from professionals.
Description:
DATA AVAILABILITY : The data that support the findings of this study are available
from the corresponding author, E.J., upon reasonable request.
