The genetic discrimination observatory : confronting novel issues in genetic discrimination

The genetic discrimination observatory : confronting novel issues in genetic discrimination

Joly, Yann; Huerne, Katherine; Arych, Mykhailo; Bombard, Yvonne; De Paor, Aisling; Dove, Edward S.; Moreno, Palmira Granados; Ho, Calvin W.L.; Ho, Chih-Hsing; Van Hoyweghen, Ine; Kim, Hannah; Lebret, Audrey; Minssen, Timo; Cathaoir, Katharina O.; Prince, Anya E.R.; Nair, Athira P.S.; Otlowski, Margaret; Pepper, Michael Sean; Sladek, Rob; Song, Lingqiao; Voigt, Torsten H.; Zawati, Ma'n H.; Dalpe, Gratien
URI: https://repository.up.ac.za/handle/2263/88469
Date: 2021-11

Abstract:

Genetic discrimination (GD) is the differential or unfair profiling of an individual on the basis of genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD and recent developments in GD since late 2020. It shows how GD can take many forms in today’s rapidly evolving society.

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